Welcome! Thanks for visiting our little "harbor" amid life's storms. We hope you
will find rest and encouragement in your struggles, big or small. Here you can:
will find rest and encouragement in your struggles, big or small. Here you can:
Subjects:
Lyme
ADD/ADHD
AIDS/HIV
Autism
Disability, Invisible Illness, Chronic Pain
Down Syndrome
Food Allergies and Chemical Sensitivities
Infertility
Miscarriage
Terminal Illness - Dream Foundation
Lyme Disease Links
What do ticks look like?
Pictures of Ticks and Lyme rashes
What is Lyme, what are the symptoms, and
how do you treat it?
Turn the Corner Foundation - This site is a must
read. The list of medical advisors is impressive--
most of the top Lyme doctors are involved. For
a list of symptoms, check out the link to the Ilads
Treatment guidelines and also read the article You
May Have it and Not Know it.
Dr. Burrascano's Diagnostic & Treatment
Guidelines This site includes a list of 38 common
symptoms (about 1/3 down the page), and
treatment guidelines that many doctors follow.
Late Stage Lyme Disease: Arguments for an
Individualized Approach This is a really good
summary with references of why long-term
antibiotics are appropriate in late-stage Lyme.
This is on Dr. James Schaller's website and he
and Dr. Jones have put this in their new book.
This is something that could really help if you are
having trouble with insurance. This one is worth
printing up and saving with your medical records.
Lyme Disease Association - Lyme Primer, ABC's
of Lyme...
Lyme Disease from Wikipedia--this is a good synopsis of Lyme including information
about the controversy in treating Lyme, and the two standards of care.
About 40% of Lyme patients have some
kind of neuropsychiatric symptoms:
Neuropsychiatric Manifestations of Lyme -
Dr. Bransfield (click on the link for the article at the top of the page)
Neuropsychiatric Manifestations of Lyme -
Dr. Fallon et al. This article really encouraged my husband that he wasn't alone in
some of those strange symtpoms he was having.
Can you test for Lyme Disease?
"No Test can rule out Lyme Disease" How Lyme is diagnosed, reasons for
test-failures.
Elisa and Western Blot: Lies that can kill you?
The problem with antibody tests. Great list defining terms near the beginning.
Reliable Testing Labs
IgeneX
Bowen
Lyme Disease Organizations for Support and
Information
Northern Illinois Lyme Resources NILR, lots of information and links.
Lyme Illinois Home of the East Central Illinois Lyme Disease Support Group.
ILADS International Lyme and Associated Diseases Society - A professional
Medical and Research Organization - this link connects to their "articles and
presentations" page.
LymeNet More medical articles
LymeAlliance Another great source of information, medical articles, info on ticks
etc...
Getting Help:
Find a local support group This link is also on the LymeNet site.
Online Support Groups:
Yahoo Lyme Support Groups (There are 49 groups listed. I've been on Robynn's
List and Lyme Aid and LoveyonLyme, all are good groups. There is also a group
for caregivers, LoveyonLymeCaregiverSupport) Another group is on Delphi, Lyme
and other Tick-borne Illnesses.
More information and articles of interest
Tick-Related Illnesses Self-Help Alliance Nancy, her sons, parents, and dog have all
had Lyme and are doing well. Read their stories and also read info on alternatives to
antibiotics (no sales, just information). Nancy contributed a Hope Story to this site,
"Life with Lyme."
Daryl Hall on Inside Edition--of "Hall and Oates" fame, very interesting article. Daryl
also has info on his website.
Lots of Links on Lyme Over 12,000 links!
Lyme Disease Association Brochures
The Effects of Lyme Disease on Students, Schools and School Policy Article by Pat
Smith of the LDA
Where Have all The Doctors Gone? Interesting news story on one family's struggle
with Lyme that highlights the attacks against doctors who treat Lyme.
Lyme
ADD/ADHD
AIDS/HIV
Autism
Disability, Invisible Illness, Chronic Pain
Down Syndrome
Food Allergies and Chemical Sensitivities
Infertility
Miscarriage
Terminal Illness - Dream Foundation
Lyme Disease Links
What do ticks look like?
Pictures of Ticks and Lyme rashes
What is Lyme, what are the symptoms, and
how do you treat it?
Turn the Corner Foundation - This site is a must
read. The list of medical advisors is impressive--
most of the top Lyme doctors are involved. For
a list of symptoms, check out the link to the Ilads
Treatment guidelines and also read the article You
May Have it and Not Know it.
Dr. Burrascano's Diagnostic & Treatment
Guidelines This site includes a list of 38 common
symptoms (about 1/3 down the page), and
treatment guidelines that many doctors follow.
Late Stage Lyme Disease: Arguments for an
Individualized Approach This is a really good
summary with references of why long-term
antibiotics are appropriate in late-stage Lyme.
This is on Dr. James Schaller's website and he
and Dr. Jones have put this in their new book.
This is something that could really help if you are
having trouble with insurance. This one is worth
printing up and saving with your medical records.
Lyme Disease Association - Lyme Primer, ABC's
of Lyme...
Lyme Disease from Wikipedia--this is a good synopsis of Lyme including information
about the controversy in treating Lyme, and the two standards of care.
About 40% of Lyme patients have some
kind of neuropsychiatric symptoms:
Neuropsychiatric Manifestations of Lyme -
Dr. Bransfield (click on the link for the article at the top of the page)
Neuropsychiatric Manifestations of Lyme -
Dr. Fallon et al. This article really encouraged my husband that he wasn't alone in
some of those strange symtpoms he was having.
Can you test for Lyme Disease?
"No Test can rule out Lyme Disease" How Lyme is diagnosed, reasons for
test-failures.
Elisa and Western Blot: Lies that can kill you?
The problem with antibody tests. Great list defining terms near the beginning.
Reliable Testing Labs
IgeneX
Bowen
Lyme Disease Organizations for Support and
Information
Northern Illinois Lyme Resources NILR, lots of information and links.
Lyme Illinois Home of the East Central Illinois Lyme Disease Support Group.
ILADS International Lyme and Associated Diseases Society - A professional
Medical and Research Organization - this link connects to their "articles and
presentations" page.
LymeNet More medical articles
LymeAlliance Another great source of information, medical articles, info on ticks
etc...
Getting Help:
Find a local support group This link is also on the LymeNet site.
Online Support Groups:
Yahoo Lyme Support Groups (There are 49 groups listed. I've been on Robynn's
List and Lyme Aid and LoveyonLyme, all are good groups. There is also a group
for caregivers, LoveyonLymeCaregiverSupport) Another group is on Delphi, Lyme
and other Tick-borne Illnesses.
More information and articles of interest
Tick-Related Illnesses Self-Help Alliance Nancy, her sons, parents, and dog have all
had Lyme and are doing well. Read their stories and also read info on alternatives to
antibiotics (no sales, just information). Nancy contributed a Hope Story to this site,
"Life with Lyme."
Daryl Hall on Inside Edition--of "Hall and Oates" fame, very interesting article. Daryl
also has info on his website.
Lots of Links on Lyme Over 12,000 links!
Lyme Disease Association Brochures
The Effects of Lyme Disease on Students, Schools and School Policy Article by Pat
Smith of the LDA
Where Have all The Doctors Gone? Interesting news story on one family's struggle
with Lyme that highlights the attacks against doctors who treat Lyme.
ADD/ADHD
Westfield Academy "Dedicated to Helping Children Discover and Develop the
Gifts They Have been Given." Also link for help with teaching ADD/ADHD and
highly distractible children.
Sizzle Bop! Where Highly Distractible People are Celebrated, Encouraged &
Empowered. This is the place to come to if you are the parent of a highly
distractible child or the spouse of a highly distractible mate. This is also the place to
come if YOU
are the highly distractible person.
AIDS/HIV
Mildmay International specializes in HIV/AIDS care, education, and training.
Mildmay International’s mission is to improve the quality of life of adults and children
living with
or affected by HIV/AIDS, primarily in resource-limited countries and communities.
Autism
Autism Research Institute Devoted to conducting research, and to disseminating the
results of research, on the causes of autism and on methods of preventing, diagnosing
and treating autism and other severe behavioral disorders of childhood.
Gluten Free Casein Free Diet Dietary intervention for autistic spectrum disorders.
A free resource for any parent who needs support implementing the GFCFDiet. It
provides a central location for finding other parents who are also using Dietary
Therapy.
Autism One Autism One is focused on education and information, covering a broad
range of topics, for parents, family members, practitioners, educators, researchers,
and others involved in the care, treatment, and recovery of children with autism.
Autism and Mercury-based Vaccines story on how mercury in vaccines is affecting
not only American children, but is now causing millions of cases of autism in China,
India and other countries.
Disability, Invisible Illness, Chronic
Pain
Rest Ministries This is a wonderful, must-see site! Great articles, newsletter,
support groups, brochures and information. Sponsor of the National Invisible
Chronic Illness Week (4th week in September).
Invisible Disabilities Advocate "Do your loved ones have a difficult time
understanding your illness, because to them you 'LOOK' fine? IDA helps friends
and family see the courage and determination it takes to live with a debilitating
illness, amidst the challenges, frustrations and losses!" Another incredible site,
amazing links!
Disability Insurance Assistance A Yahoo group that helps people understand
disability insurance procedures, requirements and paper work. The people on the
list are
disabled and are willing to share what they have learned about how to present one's
case to social security and other insurers. Hope you don't need this, but if you do,
understanding the paperwork and appeals procedures can make the difference
between your claim being approved or denied.
Computers for Disabled Freebyte's guide to free computers
Now What? Deformed hands, deformed feet, a weary spirit--What does the Bible
say about suffering?
Parents Protecting Children (United Kingdom) a loose alliance of parents,
professionals and politicians working mainly by e-mail to raise relevant issues in
Parliament and in the media and where possible to support families wrongly accused
of over anxious
parenting or similar forms of supposed child abuse.
Where is God? "Finding God's strength amidst chronic illness and pain."
Down Syndrome
Down Syndrome: What to say
What to say when your friend has a child with Down Syndrome. This article was
written by a parent.
Down Syndrome Encouragement
This site has encouraging information for the parents, not just medical what-your-
child-won't-be-able-to-do.
Food Allergies and Chemical
Sensitivities
Food Allergies Nickie Dumke is the author of 5 Years Without Food and other
books. Nickie contributed a Hope Story to this site, Waiting to Fly.
Gorden and Jacki's site Includes the Health risks of perfume (did you know that
known carcinogens and items on the EPA's Hazardous Waste list are used in making
perfumes?), and information on chemical sensitivities.
Allergy and Candida Cooking Made Easy, Canary Connect Newsletter An easy to
use Allergy Rotation diet (Candida free) Cookbook.
MCS Referral And Resources Professional outreach, patient support, and public
advocacy devoted to the diagnosis, treatment, accommodation, and prevention of
Multiple Chemical Sensitivity Disorders
Chemical Injury Information Network Education and research on Multiple
Chemical Sensitivities
HEAL The Human Ecology Action League, Inc. (HEAL) is one of the oldest
organiza-tions in the world concerned about the health effects of environmental
exposures.
St. John's Chemical Illnet an Internet community where the chemically ill, their
friends, family and loved ones can come to gather information, support, and
advocacy.
Members include activists, medical professionals, scientists, and the general public.
Sherry Rogers site
Aroma of Christ Ministry To help people with MCS find hope, strength and
encouragement for their lives through Christ.
Infertility
Endometriosis Association For information on infertility and endometriosis.
Miscarriage
Allison's Story Read this powerful story & links to other helpful sites.
Terminal Illness
Dream Foundation "The first national organization granting dreams to terminally ill
adults"
Westfield Academy "Dedicated to Helping Children Discover and Develop the
Gifts They Have been Given." Also link for help with teaching ADD/ADHD and
highly distractible children.
Sizzle Bop! Where Highly Distractible People are Celebrated, Encouraged &
Empowered. This is the place to come to if you are the parent of a highly
distractible child or the spouse of a highly distractible mate. This is also the place to
come if YOU
are the highly distractible person.
AIDS/HIV
Mildmay International specializes in HIV/AIDS care, education, and training.
Mildmay International’s mission is to improve the quality of life of adults and children
living with
or affected by HIV/AIDS, primarily in resource-limited countries and communities.
Autism
Autism Research Institute Devoted to conducting research, and to disseminating the
results of research, on the causes of autism and on methods of preventing, diagnosing
and treating autism and other severe behavioral disorders of childhood.
Gluten Free Casein Free Diet Dietary intervention for autistic spectrum disorders.
A free resource for any parent who needs support implementing the GFCFDiet. It
provides a central location for finding other parents who are also using Dietary
Therapy.
Autism One Autism One is focused on education and information, covering a broad
range of topics, for parents, family members, practitioners, educators, researchers,
and others involved in the care, treatment, and recovery of children with autism.
Autism and Mercury-based Vaccines story on how mercury in vaccines is affecting
not only American children, but is now causing millions of cases of autism in China,
India and other countries.
Disability, Invisible Illness, Chronic
Pain
Rest Ministries This is a wonderful, must-see site! Great articles, newsletter,
support groups, brochures and information. Sponsor of the National Invisible
Chronic Illness Week (4th week in September).
Invisible Disabilities Advocate "Do your loved ones have a difficult time
understanding your illness, because to them you 'LOOK' fine? IDA helps friends
and family see the courage and determination it takes to live with a debilitating
illness, amidst the challenges, frustrations and losses!" Another incredible site,
amazing links!
Disability Insurance Assistance A Yahoo group that helps people understand
disability insurance procedures, requirements and paper work. The people on the
list are
disabled and are willing to share what they have learned about how to present one's
case to social security and other insurers. Hope you don't need this, but if you do,
understanding the paperwork and appeals procedures can make the difference
between your claim being approved or denied.
Computers for Disabled Freebyte's guide to free computers
Now What? Deformed hands, deformed feet, a weary spirit--What does the Bible
say about suffering?
Parents Protecting Children (United Kingdom) a loose alliance of parents,
professionals and politicians working mainly by e-mail to raise relevant issues in
Parliament and in the media and where possible to support families wrongly accused
of over anxious
parenting or similar forms of supposed child abuse.
Where is God? "Finding God's strength amidst chronic illness and pain."
Down Syndrome
Down Syndrome: What to say
What to say when your friend has a child with Down Syndrome. This article was
written by a parent.
Down Syndrome Encouragement
This site has encouraging information for the parents, not just medical what-your-
child-won't-be-able-to-do.
Food Allergies and Chemical
Sensitivities
Food Allergies Nickie Dumke is the author of 5 Years Without Food and other
books. Nickie contributed a Hope Story to this site, Waiting to Fly.
Gorden and Jacki's site Includes the Health risks of perfume (did you know that
known carcinogens and items on the EPA's Hazardous Waste list are used in making
perfumes?), and information on chemical sensitivities.
Allergy and Candida Cooking Made Easy, Canary Connect Newsletter An easy to
use Allergy Rotation diet (Candida free) Cookbook.
MCS Referral And Resources Professional outreach, patient support, and public
advocacy devoted to the diagnosis, treatment, accommodation, and prevention of
Multiple Chemical Sensitivity Disorders
Chemical Injury Information Network Education and research on Multiple
Chemical Sensitivities
HEAL The Human Ecology Action League, Inc. (HEAL) is one of the oldest
organiza-tions in the world concerned about the health effects of environmental
exposures.
St. John's Chemical Illnet an Internet community where the chemically ill, their
friends, family and loved ones can come to gather information, support, and
advocacy.
Members include activists, medical professionals, scientists, and the general public.
Sherry Rogers site
Aroma of Christ Ministry To help people with MCS find hope, strength and
encouragement for their lives through Christ.
Infertility
Endometriosis Association For information on infertility and endometriosis.
Miscarriage
Allison's Story Read this powerful story & links to other helpful sites.
Terminal Illness
Dream Foundation "The first national organization granting dreams to terminally ill
adults"
| Stories of Hope: Lyme Disease A Caregiver's Hope Dave's Perspective A Child's View Back to Life Determined and Driving! Testing Our Vows Ten-year Headache Ended! and Past Shadows Jillian's Story Allergies & Chemical Sensitivities Waiting To Fly Suffering Words, Healing Words Chronic Illness The Spoon Theory (A "must read!" This link takes you offsite). A Letter to Normal People Death of a loved one A Daughter Forever The Warm Places Death and Alzheimer's The Folding of the Petals Going Home Infertility Fulfillment in Infertility Allison's Story (Miscarriage--this link takes you to another site, but the story is incredible. Don't miss the pictures). Inspiration: A Simple Life Broken but not Wounded Identity in Christ Praying For Healing Whispers from the Waves The Year's New Resolution You Say, God Says Quiet Time Boosters See Also: Other Hope Stories Newsletters |
What do ticks look like?
What is Lyme, what are the symptoms, how
do you treat it?
Neuropsychiatric Symptoms
Can you test for Lyme?
Reliable testing labs
Lyme Disease Organizations
Getting Help
Online Support Groups
More information, Articles of interest
What is Lyme, what are the symptoms, how
do you treat it?
Neuropsychiatric Symptoms
Can you test for Lyme?
Reliable testing labs
Lyme Disease Organizations
Getting Help
Online Support Groups
More information, Articles of interest
© 2004 Dave and Merry Marinello, all rights reserved.
Lyme Disease and Other Health Issues
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Hope is My Anchor
Strength for your soul amid life's storms
Strength for your soul amid life's storms